9 June

GRATITUDES:
1. No wasps on the back porch this morning!🎉
2. A slightly cooler morning
3. A not-as-long-as-expected day at the clinic yesterday

So, yeah, about that visit to the BMT clinic…

It really wasn’t nearly as bad as I’d imagined it would be and the tests, with the exception of the lung capacity test, were already familiar territory. However, I did spend what felt like close to an hour chatting with a clinical social worker who shed more light on the post-transplant follow-up care. Apparently I’ll need to come in to the clinic every day for the first 3-4 weeks after I’m discharged from the hospital and I won’t be allowed to drive for something like three months. That five days a week is a worst-case scenario, of course – I may not have to come in that frequently, but this complicates matters. I don’t know if Rory will be allowed that much time away from work just to ferry me about and the kids won’t have their licenses for at least six more months. They’ll have their permits but there’s no way in hell that I would want them anywhere near the I-35 highway, which is the only direct way to San Antonio. There is another option, but that would be equally problematic. There’s an organization in the city that will pay for hotel accommodations near the clinic so I wouldn’t have to travel back and forth but again, I would have to have someone with me 24/7. The social worker was fairly adamant on this one point because my condition could change from Everything’s Rosy to I Need To Get To The ER ASAP in a matter of minutes. This is an issue that will have to be resolved before my status as a suitable transplant candidate is given the green light. At least, that’s what I was told by the social worker. Rory doesn’t seem too concerned by it but I… well, let’s just say that I’m trying REALLY hard not to let my “anxiety bubble” get out of control. *Sigh*

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